Hello Everyone:
This will be short for now b/c I am going to turn my brain completely off for the weekend and fully enjoy my family and friends.
Katarina does NOT have Cystic Fibrosis based on the sweat test results. Her values were 11 and less than 10; one result from each arm. A result above 30 would be considered borderline. Now we wait for our gastroenterology appt. on Mar 9th!!
The craziest part about this is the strong possibility of NOT getting the malabsorption problem diagnosed!!!
So I am more curious than ever if she has dwarfism...the last diagnosis currently on the table.
Stay tuned...
Blessings,
Nicole
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I know it is frustrating not to have a diagnosis but I am doing a dance of joy here to know that the sweat test was negative and CF can be ruled out. I am praying that the GI specialists can help you identify solutions to get your little lady growing! A diagnosis is often helpful but the most important part is finding a treatment. Try to remember that diagnoses are based on the medical literature which is limited to what doctors have seen and chosen to study and report on. It is the tip of the iceberg but there is still lots we don't know. Lots of love to you all!
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